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background-color: #fff; border-radius: 0.5rem; box-shadow: 0 12px 24px rgba(0, 0, 0, 0.12); font-family: sans-serif; content: 'Loading...'; display: flex !important; font-size: 13px; font-weight: bold; line-height: 1; justify-content: center; min-height: 50px; text-transform: uppercase;}#speakup-player:empty{ display: block;} ROMA (ITALPRESS) - Una delegazione AIL è stata ricevuta in udienza, presso la Sala Sebastiano Ricci del Palazzo del Quirinale, dal Presidente della Repubblica Sergio Mattarella.L'incontro è avvenuto in occasione della Giornata Nazionale per la lotta contro leucemie, linfomi e mieloma e per celebrare i 55 anni di attività dell'Associazione, con l'impegno rinnovato a sostenere la ricerca scientifica e affiancare i pazienti con tumore del sangue e i loro familiari.Il Capo dello Stato ha accolto il Presidente Nazionale AIL Giuseppe Toro, il Presidente del Comitato Scientifico AIL William Arcese, il Presidente del Collegio dei Probiviri AIL Alessandro Pajno e una delegazione dei Consiglieri di Amministrazione dell'Associazione, in rappresentanza delle 83 Sezioni provinciali AIL.Nel corso del colloquio sono state ripercorse le principali tappe della lunga storia di AIL, i suoi valori fondanti, le attività e i molteplici servizi offerti ai malati ematologici; il costante sostegno alla Ricerca Scientifica quale strumento primario per la cura dei tumori del sangue, e i cui rilevanti progressi hanno contribuito in maniera determinante al miglioramento della sopravvivenza e della qualità di vita dei pazienti. È stato sottolineato il prezioso lavoro portato avanti dai volontari, più di 17.000 donne e uomini che ogni giorno donano gratuitamente il loro tempo e le loro competenze nei reparti ematologici, nelle Case alloggio AIL, e nell'assistenza domiciliare e psicologica offerta ad adulti e bambini fragili, e in molti altri servizi dedicati alla cura e al miglioramento della qualità di vita dei malati e dei loro familiari. I rappresentanti di AIL hanno evidenziato l'importanza di fare rete a livello nazionale e internazionale, il valore della collaborazione, dello scambio e della solidarietà, valori cardine per la comunità scientifica e l'Associazione."AIL da 55 anni è impegnata quotidianamente nel migliorare la qualità della vita dei pazienti ematologici e delle loro famiglie, sostenendo la Ricerca Scientifica, l'assistenza sociosanitaria, e promuovendo la conoscenza dei tumori del sangue. Siamo cresciuti molto dal 1969, diventando un punto di riferimento per i pazienti italiani e i loro caregiver, e per l'Ematologia italiana - dice Giuseppe Toro, Presidente Nazionale AIL - Siamo riconoscenti al Capo dello Stato, Sergio Mattarella, che anche quest'anno ha voluto riceverci e ha ascoltato con interesse i nostri risultati, i nostri bisogni. Siamo orgogliosi della strada fatta fin qui, strada tracciata dall'indimenticato Professor Franco Mandelli, e continuiamo a prefissarci traguardi ambiziosi affinché nessun paziente ematologico si senta mai solo nel lungo percorso della malattia: questo è il nostro obiettivo e per farlo dobbiamo sensibilizzare costantemente la cittadinanza e le Istituzioni perché ci supportino negli sforzi".Nel corso dell'incontro è stato ribadito il costante impegno nel sostenere la ricerca scientifica per la cura dei tumori del sangue attraverso l'innovazione. L'alleanza tra AIL, i Centri di ematologia e le Società Scientifiche, che si traduce in una costante cooperazione a favore dei malati è alla base dei progressi compiuti dalla ricerca che negli ultimi anni ha contribuito a migliorare la sopravvivenza e la qualità di vita dei pazienti, ai quali sempre di più in futuro potrà essere garantito l'accesso a terapie innovative e altamente efficaci.L'Associazione Italiana contro leucemie, linfomi e mieloma ha ribadito il suo sostegno a GIMEMA - Gruppo Italiano Malattie Ematologiche dell'Adulto. GIMEMA è un network composto da una rete di laboratori cui aderiscono circa 150 centri clinici, che offre diagnosi precise e accesso equo a farmaci innovativi a tutti i pazienti indipendentemente dal luogo di residenza e di cura e finanzia borse di studio a giovani medici e ricercatori per la ricerca clinica indipendente.Realizzare un futuro senza tumori del sangue è l'aspirazione di AIL, la cui missione si traduce in tre parole: ricerca, cura e sensibilizzazione. In Italia circa mezzo milione di persone convive con un tumore del sangue e ogni anno vengono diagnosticati più di 30mila nuovi casi di leucemie, linfomi e mieloma. In un anno AIL, con le sue 83 sezioni provinciali, ha finanziato 146 progetti di ricerca scientifica, 5.186 viaggi solidali, 62.898 notti offerte nelle Case alloggio AIL a 2.395 pazienti e caregiver, servizi di cura domiciliare per 29.302 accessi per adulti e 3.699 accessi pediatrici."La delegazione al termine dell'incontro ha espresso al Presidente Mattarella i più profondi ringraziamenti per la Sua costante vicinanza e attenzione alla missione di AIL", conclude la nota.- foto ufficio stampa AIL -(ITALPRESS).fsc/com28-Giu-24 15:14. di Italpress   28-06-2024 - 16:45 Link copiato Commenti Leggi la Netiquette

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